What is it like to have a Mystery Disease?

By Maureen DeGarmo

Imagine for a moment that you have the flu, you feel exhausted and achy, and it seems like your symptoms will never end. What if that were true? What if your symptoms didn’t end? This is what it feels like to have a chronic disease.

Now imagine you don’t know what disease you have, and that everyone around you – from doctors to friends and family – doesn’t know how to react because there is no real way to explain your illness. Some people may even doubt that you are really sick. This is what having a mystery disease is like.

Here are some examples of the difference between a diagnosed illness and a disease that has no name: Continue reading