How I went from Anger to Acceptance of My Illness

Woman holding her head and looking stressed

By Lisa Mark, C.P.O.

It is said that the stages we experience when dealing with a life-changing illness or injury are similar to the stages of grief: Denial, Anger, Bargaining, Depression, and Acceptance.

My illness was so extreme, life-altering, sudden, acute, severe and painful that I skipped the denial stage and went straight into anger. What turned out to be Gastroparesis was at the time a mystery that stumped my doctors, whose responses to me ranged from outright disbelief to hostility. So, yeah, I was angry.

My anger was caused partly by the awful managed-care practitioner I was seeing at the time. He had the ‘Denial’ stage down pat and accused me of lying about my symptoms to hide what he said was the true cause of my illness: Anorexia. Or maybe Bulimia.

But it was also because I was really, really pissed about having gotten sick in the first place.

I was pissed at myself for ignoring my initial symptoms until they became too severe to ignore, and for my weakness in getting sick in the first place.

I was pissed at my managed health practitioner for not believing me when I said I wasn’t making myself throw up.

I was pissed at the ER docs who misdiagnosed my illness as ‘vague stomach upset’ and sent me home with an antacid and order to ‘get some sleep.’

I was pissed at my health plan for providing so few good health care practitioners in my network.

Angry that I had to stop nursing my infant daughter because the medications I was on might cross into my breastmilk and affect her.

Pissed that while I was struggling to get better, my friends were caring for their kids, going on vacation, working and living their lives.

Angry at the cost of the financial and other resources my illness was sucking away from my family.

Angry that the life I’d laid out for myself was not turning out as I’d hoped.

Angry at the lack of acceptance from friends and family members who didn’t believe I was ‘really’ sick.

I had two little kids, aged 5 years and 3 months at the time of my first illness, and they needed me, their mom, to be healthy and available. And I was anything but. I was pissed about that, too.

I just couldn’t accept the fact that I was so sick and unavailable during these critical first years with my kids, a time when my family really needed me to be healthy.

Yeah, I spent a lot of time being pissed. Which made it difficult, if not impossible, for me to heal.

The Turning Point

My friend, one of the few who didn’t abandon me when I needed her most, stopped by to sit with me so my spouse could go to work. I was so sick that I couldn’t be left alone. She sat next to me on my sofa, patiently listening while I ranted and railed about the unfairness of it all. Why me? I kept saying. Why did IIII have to get sick? Why couldn’t it have been any one of a number of other women that I knew?

When I was finished, exhausted and tear-stained, my beautiful friend turned to me and asked me the question that would start me on my journey of acceptance and healing.

She asked me why I thought it would be any fairer if illness had happened to someone else instead of me. In essence, she was asking, ‘Why not you?’

I hate to say it, but she had a point. Why, indeed, not me? Who am I to think I am exempt from this illness?

And it was at that moment that I started to accept my illness, let go of my anger, and heal.

8 Ways to Avoid Alienating Your Friends During Your Illness

By Maureen DeGarmo

One of the more difficult side effects of a traumatic illness can be alienating your friends. When you are in pain, it’s easy to become isolated and inactive. When you do have a visitor, you may be tempted to unburden all of your accumulated pain and frustration upon your visitor. Here are some tips for sharing your pain without losing the support of your friends.

1) State the facts, clearly and simply. Your family likely already knows the basics, so be brief. Some examples:

  • “My pain back has extended down my leg, and now my leg is tingling.”
  • “The doctor has recommended physical therapy.”
  • “I had an MRI last week, which revealed some nerve damage.”

Continue reading

Happiness is: Eating a Corn Dog in the Park

By Maureen DeGarmo

Recently, I had a visit with a long-time friend, whose mother lives in a nearby residential care home. My friend asked her mom if she would like to go out for a steak dinner for Mother’s Day, as they had done last year. Strangely, her mother said no, she wanted a corn dog. So, my friend and her husband picked up Mom and drove to a park. They sat in the car, ate corn dogs, enjoyed the sunshine and had a visit. It was exactly what Mom wanted, and she was content with how they celebrated Mother’s Day. Continue reading

15 Things You Can Do for Your Friend with Chronic Illness

By Maureen DeGarmo and Lisa Mark, C.P.O.

  1. Invite her to an event, even if you know that she cannot come.
  2. Offer to bring dinner and a movie on a Friday night.
  3. Take her kids on an outing.
  4. Ask thoughtful questions, and then listen to the answers.
  5. Refrain from judging.
  6. Refrain from suggesting the latest treatment. She may have already tried it.
  7. Keep her updated on what is happening in your life. Isolation makes the disease worse.
  8. Avoid saying, “I know how you feel.”
  9. Make a specific commitment, such as calling once a week to check in.
  10. If she likes dogs, but doesn’t have one, bring your dog over for a visit.
  11. Or your cat.
  12. Share photos of your latest adventure or your children’s activities.
  13. Better yet, share photos of her children’s activities, especially if she cannot attend.
  14. Ask her if locating resources would be helpful. Then, follow through. The Illness Warrior’s Resource List is a great place to start.
  15. Ask her what she needs you to do, and then do it.

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How Illness Can Change You and What to Do About It

By Maureen DeGarmo and Lisa Mark, C.P.O.

Pain can change a person, as can other chronic conditions such as overwhelming fatigue, neurological disease, digestive diseases or other disorders.

If you have a chronic condition, then most likely you know what that means. Think back to before your health began to change. Were you more lighthearted? More patient and understanding with your loved ones? Perhaps you valued spontaneity and adventure in your life, which is now a distant memory.

If you are the care-giver for a loved one with a Traumatic Illness, then you may be on the receiving end of both alterations to your daily life as well as personality changes. You might be required to do more meal prep, more driving or more household management. Your loved one might have a shorter temper. She might yell more than she used to, have lost the ability to express herself or lost her sense of humor.

Although there is no one-size-fits-all solution, here are a few things that can help: Continue reading

Welcome to the Illness Warriors Blog

View of ocean with Welcome to Illness WarriorsIf you or a loved one have a critical illness or injury that affects your everyday life, and you struggle to manage your life around your symptoms, then you are an Illness Warrior.

Life can change in an instant. Whether long term or short-term, diagnosed or “mystery disease,” life-changing illnesses or injuries affect the way we live. We draw from our organizing backgrounds and our personal experiences with traumatic illness to help you find ways to cope, adapt to your new normal, manage your to-do list and find support where you need it.

Our blog provides resources for you to use to communicate your needs, tips for setting priorities, suggestions for how to participate in life and ideas for locating support services. If you like what we have to say, then please consider following our blog via email (see that option in the box on this page). We promise that we will never share or sell your email address.

We also offer a free Quick-Start Guide which provides action steps and resources.

Finally, we provide a range of support tools, here.

Thank you for visiting Illness Warriors!

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